Hi there and welcome! It's been nearly ten months since we welcomed our final addition to the Jorgensen family. It's been a wild ride with four little munchkins, but I'm loving every minute of it. Our little munchkins are: Addison (7), Lauryn (5), Cameron (3), and Reagan (9m). We've been taking it one day at a time, and I thought it was time to capture some of these memories in text.
Our kiddos have been pretty healthy since they were born. Cameron had tubes put in his ears when he was 18 months, and they have since fallen out. Addison had a wild bout with pneumonia in August and spent a week in the hospital, but that is a tale for another time. Our newest peanut, Reagan, however, was born with something that will require monitoring to make sure her vision is not affected.
Miss Reagan has what is known as Congenital Ptosis (pronounced tosis). Today we were sent to a Pediatric Ophthalmologist. Basically, her right eyelid droops down further than it should. I noticed it soon after birth, but thought it was swelling from birth. At her first few checkups, no one mentioned it to me, so I did not think much of it. I just figured it was something that made her special :) At her 6 month appointment, we had a med student observe her first. He asked if anyone had ever talked to me about her eye, and I said no. He told me it was called Ptosis, and I asked if it was something to be concerned about. He told me no, and that was that.
Me being the Momma that I am came home and googled it. I rescheduled her 9 month appointment with a doctor that I really like at our office. I wanted to ask her some questions about it. At our 9 month appointment, Dr. Lorenz asked if anyone had talked to us about her eye, and I said not really. She told us that it would be best to have her looked at by a Pediatric Ophthalmologist to make sure it wasn't affecting her vision. So today we went to Omaha to see. Dr. Troia.
I was not sure what to expect, but was happy with how the appointment went. When we first got there, they took us back to a room and asked the general questions about her history, when I noticed the Ptosis, and any other vision issues on either side of the family. I also showed the nurse some pictures where the Ptosis is more pronounced than other times. I realize it isn't always this bad, but I wanted to the doctor to see it at its worst. The nurse noticed that in one of the pictures, the Ptosis does cover part of her pupil, and noted that in her chart. The doctor came in and checked her out. He noted her Ptosis right away. Dr. Troia said that they measure from the crease in the eyelid to her eyelashes, and noted about a 1 mm difference. Reagan then got her eyes dilated.
After about 20 minutes, Dr. Troia did a thorough examination of her eyes. As of right now, there is not issue with her vision, but he is concerned about Reagan developing astigmatism or a lazy eye. He wants to make sure she has visual symmetry, so he will monitor her every 6 months for a while to make sure her vision does not become affected.
He discussed both types of surgery that could be done on her if need be, or if we opt to for cosmetic reasons at a later date. The first sounds more like what I would want for her if need be, but I guess only time will tell. Since we do not live in the city, Dr. Troia tried to get us in with a Pediatric plastic surgeon today to discuss which surgery would be best for her, if need be, but Dr. Pop was double-booked today, so instead we are booked back-to-back in May when we go back.
Overall, it was a good appointment. I have some research to do on the types of surgery. I want to be fully aware of what will be done if we go down that route. Hopefully her vision will not be affected, and cosmetically it will not be an issue either.
Anyway, I hope to keep this up to date with what is going on in our crazy little life. Thanks for stopping by!
